If you are reading this you probably have a child/children diagnosed with ADHD or some other concern. You may be a veteran Mom or Dad to this world or you may be brand new. Either way you are welcome. In this Blog I am sharing some of my trial by fire experience entering into this world, and my suggestions about how it could have been done better.
My middle son was diagnosed with ADHD first. I wish I could say I did all the things I have suggested in my Blog to begin with, but I didn’t. Trial and error teaches a lot, but it also results in a lot of mistakes. My son’s ADHD diagnosis was by chance. He was not being tested for that specifically, we were testing for his academic ability. Through the test he was so distracted, energetic, and inattentive the ADHD diagnosis came along with the other test results. I was not surprised by the diagnosis of ADHD, but I also felt at a loss. I had the advantage of my son being in play therapy to help with sensory problems and overall behavioral concerns, but I honestly did not know what to do. The therapist was helpful, but I did not know what questions to ask to take full advantage of her assistance. I was walking in completely new territory and I had no idea how to navigate it. Getting the diagnosis is a relief on one hand and a punch in the gut on the other. No one wants to be told there is something wrong with their kid. So what did I do? I stumbled blindly. I was kindly guided by teachers, therapists, the guidance counselor, physicians, and the principle through the beginning of a very hard journey. Once I got over being overwhelmed, the intellectual in me kicked in and I started buying book after book. I started searching the web. I started teaching myself about my kid’s disorder. I recognized the symptoms of ADHD in my oldest as well, but we delayed testing to make sure it was not a developmental delay. I am still comfortable with that decision. It was right for her. She was not diagnosed until the end of her 2nd grade year.
By the time my son was in 4th grade I thought we were going fairly well. He was having some trouble at the end of his third grade year, but he made a lot of improvements from the beginning of the year. I did not realize things would get much worse before they got better. Although, I think I handled the first few years of school as well as I could there are some things I would do differently. If I were given the option of changing only one thing I would choose to ask more questions about what it meant for my child to be ADHD. I had questions, but I don’t think they were very good ones. Instead of asking questions I took on the mantle of teaching myself about the disorder, which is important and I encourage any parent or person newly diagnosed to do the same. The problem with only relying on you is you begin to isolate yourself. You don’t reach out to other parents and professionals to get the support you NEED to be the best parent for your child. Yes, you NEED the support. It is not ancillary or icing on the cake. Support is a big deal. There are parents who do not have that, I have been there, and it is hard. It weighs on you like a ton of bricks. You need support so you can be a healthy happy parent and able to give 100% to your child. Hindsight is 20/20 so I know there are things I could have done better in the beginning. There are many things I can do better now. ( I am working on those.) The following are some questions I wish I asked when I received the diagnosis and took notes when I was given the answers. This would have made my own research easier and more directed and would have help to reduce my overall anxiety level when dealing with this.
- What type of ADHD does my kid have? This makes a big difference. The types in general are called inattentive type, hyperactive type, and combination type. Have the diagnosing therapist explain the types and what they mean. Knowing which type of ADHD your child has will effect what support he or she needs to have in place to help them succeed. My two diagnosed kids are two different types and require different interventions at times.
- What does this mean for my kid’s development? I am going to warn you the therapist may start with that is a really broad question and there are a lot of possibilities. Ask them to give you the cliff notes version and based upon the assessment of your kid what are the most likely challenges they would expect.
- What can I do at home to help my child with this? You may need to change how you function at home. ADHD kids need more structure than average and they need clear guidelines.
- What are the approaches to treatment and what in the therapist opinion is the best approach? Many parents already have some idea how they feel about medication and/or therapy. I would suggest throwing all you have heard aside, listen and learn about it. If you are still pro or con to the medication or therapy I understand, but make that a well informed decision.
If you ask these questions in the initial meeting you will probably be overwhelmed with information. It is OK to be overwhelmed. Go home and talk to your fellow parent about it. If you do not have a fellow parent get someone with a listening ear, a closed mouth (no gossips), and capable of helping you work out the problem. It is OK to be mad, sad, relieved or whatever else you may feel. It is not OK to do nothing.
These questions are not exhaustive. If you are reading this, but dealing with a different disorder I am sure they can be changed to apply. Bottom line to this is start building a positive relationship with as many people as possible who are involved with caring for your child. Educate yourself about what is going so you can educate your child and others. Don’t let others make you feel like you are doing too much. Every time you lay a brick to serve as support for your child you are reinforcing his or her foundation, and you will see the results. I am interested to learn what you would do differently and why when dealing with your child’s ADHD or other developmental disorders?
Black ADHD MOM